README.md 3.85 KB
Newer Older
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
1
2
# WIN data sharing decision tree

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
3
4
5
***"A guide for researchers to follow in designing their study with a view to sharing their data on the WIN XNAT Open Data server."***

This is the GitLab repository for the development (and possibly deployment) of the WIN data sharing decision tree.
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
6
7
8

---

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
9
10
11
12
13
14
15
16
## The problem

*"Shared data should as open as possible and as closed as necessary"*.

Working out how to appropriately share data requires the navigation through various lines of guidance and legislation, notably GDPR. This is a complex process which is discipline and institutionally specific.

## The solution
We are developing a flow chart which researchers can walk through to address the question "Can I share my data on XNAT?".
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
17

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
18
*Working through this flow chart will aid researchers in designing their projects and conducting the necessary stages of data preparation in order to share their data without compromising their ethical and legal obligations to participants and research funders.*
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
19
20
21
22
23

## What are we doing?

The Open WIN Steering Committee have been working to delineate the stages a researcher should (and in some cases *must*) go through in order to share their data in accordance with University of Oxford Best Practice and GDPR.

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
24
We are now opening this work up to the community to provide feedback on bottlenecks, missing guidance and further refinements.
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
25

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
26
This consultation will start by inviting a small number of researchers (with a range of data types) to [add and comment on issues with the proposed guidance](https://git.fmrib.ox.ac.uk/open-science/data-sharing-decision-tree/-/issues) and update the diagram where appropriate.
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
27

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
28
## What do we need
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
29

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
30
31
32
We need researchers to walk through these documents with their existing or hypothetical research projects. Help us to identify gaps, issues and solutions!

Take a look at these documents:
33
- [The decision tree](./docs/decision-tree.md)
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
34
- [Appendices and notes](./docs/WIN-data-sharing-decision-tree-Appendicies.md)
35

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
36

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
37
If you'd like to comment on these documents, please submit an [issues](https://git.fmrib.ox.ac.uk/open-science/data-sharing-decision-tree/-/issues) describing your feedback. We'll be in touch to discuss your suggestions further.
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
38

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
39
We will also be organising a group workshop, which you are invited to attend to review and provide feedback on these proposals. Stay tuned for details!
Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
40
41
42
43
44
45
46
47
48
49


## Who are we

This project is being lead by the [Open WIN Steering Group](https://www.win.ox.ac.uk/open-win)

Contributions to the development of this resource will be solicited from the [Open WIN Community](https://cassgvp.github.io/WIN-Open-Neuroimaging-Community/)

The XNAT Open Data Server is being developed by the [Open Data Team](https://cassgvp.github.io/WIN-Open-Neuroimaging-Community/docs/tools/data.html#working-group-members-alphabetically)

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
50

Cassandra Gould van Praag's avatar
Cassandra Gould van Praag committed
51
52
53
54
55
56
57
58
59
60
61
62
63
64
65
66
67
68
69
70
## Contact us

The easiest way to get in touch is via our [GitLab issues](https://git.fmrib.ox.ac.uk/open-science/data-sharing-decision-tree/-/issues). Leave a comment or feedback and we'll be in touch!

You are also welcome to email the Open WIN Community Engagement Coordinator  at [cassandra.gouldvanpraag@psych.ox.ac.uk](mailto:cassandra.gouldvanpraag@psych.ox.ac.uk), to discuss this project, make suggestions, or just say "Hi"!

## Thank you!

Thank you for taking the time to look at these documents. We are excited to build this essential tool to help you deliver on your ambitions to share your data with the world.

# Acknowledgements

Created using materials from: Das et al, 2019, \"MCIN Open Science
Guidance: Data Preparation Checklist\"
[https://loris.ca/MCINOpenScienceGuidance\_DataPrepChecklist.pdf](https://loris.ca/MCINOpenScienceGuidance_DataPrepChecklist.pdf)

Inspired by Huijser, Dorien, Achterberg, Michelle, Wierenga, Lara, Van
\'t Veer, Anna, Klapwijk, Eduard, Van Erkel, Raymond, & Hettne,
Kristina. (2020, June 19). MRI data sharing guide. Zenodo.
http://doi.org/10.5281/zenodo.3822290