Commit cd294f6c authored by Cassandra Gould van Praag's avatar Cassandra Gould van Praag
Browse files

fix formatting

parent bd3b150f
......@@ -11,8 +11,8 @@
**When**: Friday 30th July 2021, 11:30-13:00 BST (UTC+1)
**Contact**: Email Cass:
[*cassandra.gouldcanpraag\@psych.ox.ac.uk*](mailto:cassandra.gouldcanpraag@psych.ox.ac.uk)
or message on Open WIN Slack \#data-sharing-decision-tree
[cassandra.gouldcanpraag@psych.ox.ac.uk](mailto:cassandra.gouldcanpraag@psych.ox.ac.uk)
or message on Open WIN Slack #data-sharing-decision-tree
**Material we will be reviewing**:
- [Decision tree](https://git.fmrib.ox.ac.uk/open-science/community/data-sharing-decision-tree/-/blob/master/docs/decision-tree.md)
......@@ -50,7 +50,7 @@ or message on Open WIN Slack \#data-sharing-decision-tree
## Participation Guidelines
- We value the participation of every member of our community and want to ensure that every contributor has an enjoyable and fulfilling experience. Please show respect and courtesy to other community members at all times.
- We are dedicated to a harassment-free experience for everyone, regardless of gender, gender identity and expression, sexual orientation, disability, physical appearance, body size, race, age, religion, politics or technology choices. We do not tolerate harassment by and/or of members of our community in any form.
- We fall under the formal policy and reporting guidelines of the [*University Bullying and Harassment Policy*](https://edu.admin.ox.ac.uk/harassment-policy) and we expect everyone to be a [*responsible bystander*](https://edu.web.ox.ac.uk/bystander)
- We fall under the formal policy and reporting guidelines of the [University Bullying and Harassment Policy](https://edu.admin.ox.ac.uk/harassment-policy) and we expect everyone to be a [responsible bystander](https://edu.web.ox.ac.uk/bystander)
## How do you feel about data sharing? How does your PI feel about data sharing?
- Mats: Great! We should all do it! +1 +1
......@@ -102,10 +102,10 @@ Add below any comments about each of the steps in this process.
- Can we split this [the whole decision tree] off into "PI level actions" and "researcher level"? Would make it easier to know what you should be concerned about.
#### Ethics approval
- Discuss retrospective ethics approval - \*think\* if you don\'t' already have consent to share openly, you need consent to recontact your participants and consent them to sharing! → is a simple e-mail ("I consent to ...") sufficient, or is there a certain form to be be completed?
- Discuss retrospective ethics approval - *think* if you don't already have consent to share openly, you need consent to recontact your participants and consent them to sharing! → is a simple e-mail ("I consent to ...") sufficient, or is there a certain form to be be completed?
- Comment that you do not need consent to share if it has been completely anonymised. When is it possible to make it 100% anonymous?
- Secondary analysis output: Aggregation of data, minimum number of subjects?
- Clarity on what (if any) data can be shared without specific ethical approval. For example, methods development scans which are routine at WIN and can contain \*no\* clinical information.
- Clarity on what (if any) data can be shared without specific ethical approval. For example, methods development scans which are routine at WIN and can contain *no* clinical information.
#### Participant consent
- Relying on the lab to have a sufficiently audible consent process to remove (jnot share) participants which do not give consent for sharing.
......@@ -116,7 +116,7 @@ Add below any comments about each of the steps in this process.
- Probably lots of stuff we can share from biobank e.g. [this information sheet](https://www.ukbiobank.ac.uk/explore-your-participation/contribute-further/serology-study/information-sheet).
- If you move to "on request", add that you should then draw up a contract with the intended recipient of the data. That contract might be only a slight deviation from the standard DUA we are developing here for XNAT.
- Can a material transfer agreement (MTA) be used for sharing MRI data? Can also cover digital data. There are some stock templates about what you can and can't do.
- Are we putting limits on what people can and can't do with the shared data, e.g. non-commercial use, "research only", specific acknowledgement statements from funders.... Come back to Ben to find out more!\ → At the Donders Repo, you have to choose a license when sharing your data (options are various existing licenses, or a general Donders license
- Are we putting limits on what people can and can't do with the shared data, e.g. non-commercial use, "research only", specific acknowledgement statements from funders.... Come back to Ben to find out more! → At the Donders Repo, you have to choose a license when sharing your data (options are various existing licenses, or a general Donders license
- Collaboration agreements are being designed with the Trust, which has some nice statements which might be relevant. → At the Donders Repo, when you want to access data, you have to agree with a user agreement which also specifies you won't try do de-anonymise the data - we will cover this in the final section of the processes :)
### Process 2: Protected features of the data
......@@ -152,7 +152,7 @@ Add below any comments about each of the steps in this process.
#### Participant identifiers
- Where do you currently store your participant identifiers? Where would you store them if you were going to share data?
- For clinical studies, this is standard practice. In Oxford sponsored study =\> oxford holds key. Trust sponsored =\> trust holds key. Contract then says "you will never share that key".
- For clinical studies, this is standard practice. In Oxford sponsored study => oxford holds key. Trust sponsored => trust holds key. Contract then says "you will never share that key".
- Calpendo may store key. Check that calpendo no-longer holds names. Can see the name and the WIN ID (and time of scan) next to each other.
- We recommend not sharing the scan ID, to break the link between the data that WIN hold. You could share your own generated IDs, or you could randomise.
- Oncology policy to randomise again before sharing. Cass look into this policy.
......@@ -206,7 +206,7 @@ Add below any comments about each of the steps in this process.
## Feedback on the meeting
- Please take a few minutes to tell us how this day went for you! Your feedback is invaluable to making this community and these events work.
- You are also welcome to email feedback to
[*cassandra.gouldvanpraag\@psych.ox.ac.uk*](mailto:cassandra.gouldvanpraag@psych.ox.ac.uk)
[cassandra.gouldvanpraag@psych.ox.ac.uk](mailto:cassandra.gouldvanpraag@psych.ox.ac.uk)
#### What worked?
......
......@@ -8,11 +8,11 @@
**Where**: Teams
**When**: Friday 30th July 2021, 11:30-13:00 BST (UTC+1)
**When**: TBC
**Contact**: Email Cass:
[*cassandra.gouldcanpraag\@psych.ox.ac.uk*](mailto:cassandra.gouldcanpraag@psych.ox.ac.uk)
or message on Open WIN Slack \#data-sharing-decision-tree
[cassandra.gouldcanpraag@psych.ox.ac.uk](mailto:cassandra.gouldcanpraag@psych.ox.ac.uk)
or message on Open WIN Slack #data-sharing-decision-tree
**Material we will be reviewing**:
- [Decision tree](https://git.fmrib.ox.ac.uk/open-science/community/data-sharing-decision-tree/-/blob/master/docs/decision-tree.md)
......@@ -45,7 +45,7 @@ or message on Open WIN Slack \#data-sharing-decision-tree
## Participation Guidelines
- We value the participation of every member of our community and want to ensure that every contributor has an enjoyable and fulfilling experience. Please show respect and courtesy to other community members at all times.
- We are dedicated to a harassment-free experience for everyone, regardless of gender, gender identity and expression, sexual orientation, disability, physical appearance, body size, race, age, religion, politics or technology choices. We do not tolerate harassment by and/or of members of our community in any form.
- We fall under the formal policy and reporting guidelines of the [*University Bullying and Harassment Policy*](https://edu.admin.ox.ac.uk/harassment-policy) and we expect everyone to be a [*responsible bystander*](https://edu.web.ox.ac.uk/bystander)
- We fall under the formal policy and reporting guidelines of the [University Bullying and Harassment Policy](https://edu.admin.ox.ac.uk/harassment-policy) and we expect everyone to be a [responsible bystander](https://edu.web.ox.ac.uk/bystander)
## How do you feel about data sharing? How does your PI feel about data sharing?
-
......@@ -68,7 +68,7 @@ While we're working through each step:
### Process 4: Metadata
Your shared research data should be supported by additional metadata to make it findable, accessible, interoperable, and reusable ([*FAIR*](https://www.go-fair.org/fair-principles/)). This process helps you identify what metadata will be necessary to make your data FAIR, how to collate it, and how to sufficiently describe it.
Your shared research data should be supported by additional metadata to make it findable, accessible, interoperable, and reusable ([FAIR](https://www.go-fair.org/fair-principles/)). This process helps you identify what metadata will be necessary to make your data FAIR, how to collate it, and how to sufficiently describe it.
Add below any comments about each of the steps in this process.
......@@ -124,7 +124,7 @@ Add below any comments about each of the steps in this process.
## Feedback on the meeting
- Please take a few minutes to tell us how this day went for you! Your feedback is invaluable to making this community and these events work.
- You are also welcome to email feedback to
[*cassandra.gouldvanpraag\@psych.ox.ac.uk*](mailto:cassandra.gouldvanpraag@psych.ox.ac.uk)
[cassandra.gouldvanpraag@psych.ox.ac.uk](mailto:cassandra.gouldvanpraag@psych.ox.ac.uk)
#### What worked?
......
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